Research

Hope Alive Ministry is committed toward research of diseases while helping support families affected by life-threatening and chronic illnesses.

Below, are some organizations that provide information on several diseases and are dedicated toward research.

1. The Ronan Foundation: The Ronan  Foundation was founded in honor of Ronan Sean Thompson, who passed away from Neuroblastoma cancer in May 2011 just 3 days before his 4th birthday. It is “a non-profit 501(c)3 organization dedicated to finding a cure for neuroblastoma, a form of childhood cancer. We are currently fundraising to create a world-class neuroblastoma research and care center dedicated to funding both traditional and non-traditional treatments to reduce the number of children affected by this disease and increase survival rates.” This organization is committed to raising awareness for neuroblastoma, so that one day children like Ronan will no longer have to suffer and ultimately die. http://www.theronanfoundation.org

2. St. Baldrick’s Foundation: St. Baldrick’s Foundation is a “volunteer-driven charity committed to funding the most promising research to find cures for childhood cancers and give survivors long, healthy lives.” Each year they host several head-shaving events,

partnerships, and advocacy initiatives to raise money or childhood cancer research. However, their main goal is to have the “greatest impact for kids with cancer around the world. “Supporters donate money to help sponsor the shaves and other events throughout the year. 100% of their proceeds go toward childhood cancer research. http://www.stbaldricks.org

3. Hayden’s Heart Foundation: Hayden’s Heart Foundation was founded in memory of Hayden Dorsett, who passed away from a very rare Congenital Heart Defect called Hypoplastic Left Heart Syndrome (HLHS) when he was only 5 months old. The foundation is dedicated to raising awareness of Congenital Heart Defects (CHD’s). They also are committed to helping other heart families in need, so that no other families will know the heartache Hayden’s family is now aware of. They achieve their goal of helping other heart families with medical and travel expenses through various fundraisers throughout the year. http://www.haydensheart.org

4. Kids Wish Network: Kids Wish Network grants wishes to children with life-threatening diseases between 3 and 18. The wishes help these children to forget for a couple days what they are going through. It is “an international charitable organization dedicated to infusing hope, creating happy memories, and improving the quality of life for children having experienced life-altering situations. Kids Wish Network assists children and their families through [Hero of the Month Program, Holiday of Hope Gift Banks, Wish Granting, and Kidz Klub].” Kids Wish Network also travel across the United States bringing joy to children. http://kidswishnetwork.org

5. Cystic Fibrosis Foundation: The Cystic Fibrosis Foundation seeks to search for a cure for Cystic Fibrosis through funding research. Their primary focus is “to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.” Each year the foundation hosts a “Great Strides” walk in cities across the United States to raise money for Cystic Fibrosis. The foundation also provides information on Cystic Fibrosis as well as how to live with the disease. The website gives different ways to get involved with the foundation as well. http://www.cff.org

6. Children’s Tumor Foundation: Children’s Tumor Foundation is committed to “improving the health and well-being of individuals and families affected by neurofibromatosis (NF), the term for three distinct disorders: NF1, NF2 and schwannomatosis.” Their  mission is “to advance peer-reviewed research to develop treatments and cures for NF; support persons with NF and their families by making thorough and accurate information readily available; assist in developing clinical centers and best practices to improve access to quality healthcare for those who live with NF; and expand public awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and encourage support for NF research.” http://www.ctf.org

7. Give Kids the World: Give Kids the World is a resort located in Kissimmee, Florida where children with life-threatening illnesses and their families stay. They are committed to putting a smile on families’ faces because as their motto states it is, “Where Happiness Inspires Hope.” It is “a non-profit organization that exists only to fulfill the wishes of all children with life-threatening illnesses and their families from around the world to experience a memorable, joyful, cost-free visit to the Central Florida attractions, and to enjoy the magic of Give Kids.”  “Give Kids The World is a place where families find joy, laughter, serenity, and a lifetime of memories. Through the tireless support of our volunteers, employees and generous partners, we dedicate each and every day to these special families.” http://www.gktw.org

 8. Disabled Sports USA: Disabled Sports USA gives special needs children a way to rehabilitate and gain confidence through sports, all while having fun and being around other special needs children. The foundation helps children feel that they can do anything they want to do. Each year, they help 60,000 youth and adults be able to play sports. Through the foundation, children can feel like a kid again. The foundation offers plenty of different sports to get involved in during summer and winter months.  http://www.disabledsportsusa.org/

9. Children’s Skin Disease Foundation: Children’s Skin Disease Foundation helps to heal the emotional hurt that children who have skin diseases feel and to support the families afflicted with skin diseases. It provides information on skin diseases while assisting families with financial burdens. The foundation supports families including healthy siblings who often feel left out. Their mission is to “improve the quality of life of children with skin disease by creating a strong support network and increasing education and awareness about these severe, life-threatening conditions.” They are also “dedicated to raising money to fund medical research to improve treatment of and find cures for skin diseases that afflict children.” https://www.csdf.org

10. Children’s Cancer Recovery Foundation: Children’s Cancer Recovery Foundation “assists children under age 18 and their families who are facing the hardships of a cancer diagnosis.”  It helps to minimize the devastation a cancer diagnosis causes the entire family from parents to siblings to the patient themselves. They provide children with gifts such as board games, toys, and crayons to the hospital to give the child a moment of joy. The foundation assists with bills families have as a result of the cancer diagnosis. A cancer diagnosis is not only physically exhausting, but can be mentally and socially difficult as well. http://childrenscancerrecovery.org

 

 

Advertisements

Thank you for commenting on our blog.

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s

%d bloggers like this:
search previous next tag category expand menu location phone mail time cart zoom edit close