Research

Hope Alive Ministry is committed toward research of diseases while helping support

families affected by them.

Below, are some organizations that provide information on several diseases and are dedicated toward research.

1. The Ronan Thompson Foundation: The Ronan Thompson Foundation was

founded in honor of Ronan Sean Thompson, who passed away from Neuroblastoma cancer

in May 2011 just 3 days before his 4th birthday. It is “a non-profit 501(c)3 organization

dedicated to finding a cure for neuroblastoma, a form of childhood cancer. We are currently fundraising to create a world-class neuroblastoma research and care center dedicated

to funding both traditional and non-traditional treatments to reduce the number of

children affected by this disease and increase survival rates.” This organization is committed

to raising awareness for neuroblastoma, so that one day children like Ronan will no longer

have to suffer and ultimately die. http://www.theronanthompsonfoundation.com

 

2. St. Baldrick’s Foundation: St. Baldrick’s Foundation is a “volunteer-driven charity committed to funding the most promising research to find cures for childhood cancers

and give survivors long, healthy lives.” Each year they host several head-shaving events,

partnerships, and advocacy initiatives to raise money or childhood cancer research.

However, their main goal is to have the “greatest impact for kids with cancer around the

world. “Supporters donate money to help sponsor the shaves and other events

throughout the year. 100% of their proceeds go toward childhood cancer research. http://www.stbaldricks.org

 

3. Hayden’s Heart Foundation: Hayden’s Heart Foundation was founded in honor

of Hayden Dorsett, who passed away from a very rare Congenital Heart Defect called

Hypoplastic Left Heart Syndrome (HLHS) when he was only 5 months old. The foundation

is dedicated to raising awareness of Congenital Heart Defects (CHD’s). They also are

committed to helping other heart families in need, so that no other families will know the

heartache Hayden’s family is now aware of. They achieve their goal of helping other

heart families with medical and travel expenses through various fundraisers throughout

the year. http://www.haydensheart.org

 

4. Kids Wish Network: Kids Wish Network grants wishes to children with

life-threatening diseases between 3 and 18. The wishes help these children to forget for a

couple days what they are going through. It is “an international charitable organization

dedicated to infusing hope, creating happy memories, and improving the quality of life for

children having experienced life-altering situations. Kids Wish Network assists children

and their families through [Hero of the Month Program, Holiday of Hope Gift Banks,

Wish Granting, and Kidz Klub].” Kids Wish Network also travel across the United States

bringing joy to children. http://kidswishnetwork.org

 

5. Cystic Fibrosis Foundation: The Cystic Fibrosis Foundation seeks to search for a

cure for Cystic Fibrosis through funding it. Their primary focus is “to support the

development of new drugs to fight the disease, improve the quality of life for those with

CF, and ultimately to find a cure.” Each year the foundation hosts a “Great Strides” walk

in cities across the United States to raise money for Cystic Fibrosis. The foundation also

provides information on Cystic Fibrosis as well as how to live with the disease.

The website gives different ways to get involved with the foundation as well. http://www.cff.org

 

6. Children’s Tumor Foundation: Children’s Tumor Foundation is committed to “improving the

health and well-being of individuals and families affected by neurofibromatosis (NF), the term for three

distinct disorders: NF1, NF2 and schwannomatosis.” Their  mission is “to advance peer-reviewed

research to develop treatments and cures for NF; support persons with NF and their families by making

thorough and accurate information readily available; assist in developing clinical centers and best

practices to improve access to quality healthcare for those who live with NF; and expand public

awareness of NF to improve diagnoses, increase understanding of the challenges that NF presents, and

encourage support for NF research.” http://www.ctf.org

7. Give Kids the World: Give Kids the World is a resort located in Kissimmee, Florida

where children with life-threatening illnesses and their families stay. They are committed to

putting a smile on families’ faces because as their motto states it is, “Where Happiness

Inspires Hope.” It is “a non-profit organization that exists only to fulfill the wishes of all

children with life-threatening illnesses and their families from around the world to

experience a memorable, joyful, cost-free visit to the Central Florida attractions, and to

enjoy the magic of Give Kids.”  “Give Kids The World is a place where families find joy,

laughter, serenity, and a lifetime of memories. Through the tireless support of our

volunteers, employees and generous partners, we dedicate each and every day to these

special families.” http://www.gktw.org

 8. Disabled Sports USA: Disabled Sports USA gives special needs children a way to

rehabilitate and gain confidence through sports, all while having fun and being around

other special needs children.

The foundation helps children feel that they can do anything they want to do. Each year,

they help 60,000 youth and adults be able to play sports. Through the foundation, children

can feel like a kid again. The foundation offers plenty of different sports to get involved in

during summer and winter months.  http://www.disabledsportsusa.org/

9. Children’s Skin Disease Foundation: Children’s Skin Disease Foundation helps

to heal the emotional hurt that children who have skin diseases feel and to support the

families afflicted with skin diseases. It provides information on skin diseases while

assisting families with financial burdens. The foundation supports families including

healthy siblings who often feel left out. Their mission is to “improve the quality of life of

children with skin disease by creating a strong support network and increasing education

and awareness about these severe, life-threatening conditions.” They are also “dedicated

to raising money to fund medical research to improve treatment of and find cures for

skin diseases that afflict children.” https://www.csdf.org

 

10. Children’s Cancer Recovery Foundation: 

Children’s Cancer Recovery Foundation “assists children under age 18 and their families

who are facing the hardships of a cancer diagnosis.”  It helps to minimize the devastation

a cancer diagnosis causes the entire family from parents to siblings to the patient

themselves. They provide children with gifts such as board games, toys, and crayons to the

hospital to give the child a moment of joy. The foundation assists with bills families have as

a result of the cancer diagnosis. A cancer diagnosis is not only physically exhausting, but

can be mentally and socially difficult as well. http://childrenscancerrecovery.org

 

 

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