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Posted in Must Reads!

September 2017 Childhood Cancer Slideshow!

September is Childhood Cancer Awareness Month and the color is gold. Our Founder, Bayley Paharik, made a slideshow featuring childhood cancer facts as well as children who have cancer, in remission from cancer or have passed away from childhood cancer. She also made a childhood cancer slideshow in 2015. 

Click here to view the slideshow. Be sure to subscribe to our YouTube channel. We try to upload new videos there every Friday. 

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

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Posted in Must Reads!

Remembering Anniversary of 9/11/01!

Today marks 16 years since the terrorist attacks that happened in the United States on September 11, 2001. Most Americans who were alive during that time will never forget it or what they were doing on that day. Some Americans were too young to remember that day or will never be born yet, but they will know what happened on that day from relatives or learning about it in school. 

Americans will never forget the horrors of that day!

Today in particular we remember the lives lost 16 years ago today and everyone who were directly impacted by the terrorist attacks such as the firefighters who helped on 9/11 and are dealing with the effects such as breathing difficulties as a result. We also remember everyone dealing with post traumatic stress disorder (PTSD) as a result of experiencing first hand the terrors of 9/11. 

9:11
Source: http://www.crosscards.com/cards/holidays/patriot-day/september-11-never-forget-memorial.html

We remember and will never forget!

Posted in Must Reads!

Leukodystrophy Awareness Slideshow – 2017!

September is Leukodystrophy Awareness Month. In September 2013, we made our first ever Leukodystrophy Awareness slideshow. We then updated it in February 2016. We made another Leukodystrophy Awareness slideshow in September 2016 and made an updated version a few days later in September 2016. Our Founder, Bayley Paharik, then made another Leukodystrophy Awareness Slideshow for this month. Please watch it by clicking here. Bayley Paharik made all of our slideshows. In the slideshow, we started with Lipid Storage Disorders since Krabbe Disease and Metachromatic Leukodystrophy (MLD) are both forms of Leukodystrophies and are also Lipid Storage Disorders. 

Source: http://immovingalong.blogspot.com/2013/09/leukodystrophy.html
Posted in Must Reads!

August 2017 – 5 Kids Needing Cards!

There are several children who need extra cheering up. Do you like to make homemade cards? Here are some children who need some cards:

1. Tenley Thompson – FB page: Team Tenley; Address: PO Box 1 New London, MN 56273; Note: She can only see some light, so keep the cards bright. Also, please include her younger brother Bryden.

2. Mason Blumenthal (older brother to Finn Blumenthal; Finn is having surgery on Monday, August 28 and will be gone for awhile!) – FB page: Prayers for Finn; Address: Attn: Kelly Blumenthal PO Box 5042 Fredericksburg, Va 22403

3. Salvatore and Giovanni Sereno – FB page: Sereno Warriors; Address: PO Box 6242
West Caldwell, NJ 07007

4. Ella D’Angelo – FB page: Team Ella; Address: Po box 290 Glenolden Pa 19036

5. Tripp Halstead – FB page: Tripp Halstead Updates; Address: PO Box 509 Jefferson, GA 30549; Note: He is visually impaired, so make card with bright colors. 

Cards help bring so much joy to these families. We also send cards to Ronald McDonald Houses across the country and will have another opportunity for you to make cards for the children there as well as thank you cards for the families to send to their nurses soon.

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

 

 

Posted in Must Reads!

Teaching Children to Accept People with Special Needs!

Teaching acceptance of everyone is an important lesson especially for children. Children and adult with special needs especially need acceptance. Here are some ways to teach children to accept people with special needs:

1. Tell your child that even though they may look different that they still have feelings and are just like them. 

2. Allow the child to ask questions if they see someone with special needs. It is okay to ask questions and is better to ask then to stare.

3. Allow the child to see similarities between them and the person with special needs. For example, if they are both children, say that the child probably likes to play just like they do. It may just take them a bit longer to learn things, but that it is okay. 

4. Have a positive attitude about people who are different. If your child sees you interact in a positive way with people with special needs, they will see there is nothing to be afraid of.

5. Read some books about children with special needs. The book, “Wonder” is a great one. It is being made into a movie and will be in theatres in November. The book is for ages 8-12. 

Everyone is different and that is perfectly okay. 

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

Posted in Must Reads!

Request for Childhood Cancer Slideshow – 2017!

September is Childhood Cancer Awareness Month and we are making a slideshow to raise awareness of childhood cancer. If you would like your child/children ages 0-18 currently battling cancer, in remission from cancer or who passed away from cancer who was between the ages of 0-18 when they passed away, please send us the following to my email address at hopealiveministry4you@gmail.com with the subject line, “Childhood Cancer Slideshow 2017” by Monday, August 28, 2017:

1. 1 picture of your child/children (children who have passed away may be included as well!) in .jpg format. Please choose a picture where there’s enough space on top and on the sides where we can add name, birthdate, age passed (if applicable) and type of cancer.
2. Please include short story of your child – Example: How old they were diagnosed and how you found out they had cancer . No longer than 5-6 sentences in length.
3.  Child’s form of cancer (example: DIPG)
5. Child’s birthdate – Day, Month & Year; Please include even if child passed away.
6. Day, Month & Year of child’s passing (If applicable!)
7. Link to child’s FB, Caringbridge site, or Website (If available, so people viewing the slideshow can follow your child’s journey.)

The Childhood Cancer slideshow will be published publicly (where everyone can view it and share it!) on our YouTube site, our Facebook page, our Twitter page & this blog.

Thank you for allowing us to include your child/children in our slideshow!

*During this month, we will be sharing facts about childhood cancer, doing some videos on our YouTube channel, and sharing children who are battling childhood cancer or who passed away from childhood cancer. If you would like us to feature your child this month, please send us their name (first and last or at least last initial), type of childhood cancer and one thing you would like everyone to know about childhood cancer (e.g why awareness is important to you, etc.) to hopealiveministry4you@gmail.com or you can also type it under the “Contact Us” box.

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

 

Posted in Must Reads!

2017 Leukodystropy Awareness Slideshow!

September is Leukodystrophy Awareness Month and since next month is September, right around the corner. Like last year, I (Bayley Paharik, Our Founder) will be creating a Leukodystrophy Awareness Slideshow. 

If you are interested in your child/children being featured who are between 0-18 or were between those ages when they passed away, please send us the following information to hopealiveministry4you@gmail.com with the subject line “Leukodystrophy Slideshow September 2017” by Monday, August 28, 2017.

1. 1 picture of your child/children (children who have passed away may be included as well!) in .jpg format. Please choose a picture where there’s enough space on top and on the sides where I can add name, birthdate, age passed (if applicable) and type of Leukodystrophy.

2. Please include short story of your child – Example: How old they were diagnosed, when they received a transplant (if applicable) and how you found out they had the Leukodystrophy . No longer than 5-6 sentences in length.

3. Please include if your child/children received a transplant and type of transplant.

4. Child’s Leukodystrophy (If unspecified; please let us know).

5. Child’s birthdate – Day, Month & Year; Please include even if child passed away.

6. Day, Month & Year of child’s passing (If applicable!)

7. Link to child’s FB, Caringbridge site, or Website (If available, so people viewing the slideshow can follow your child’s journey.)

The Leukodystrophy slideshow will be published publicly (where everyone can view it and share it!) on our YouTube site, our Facebook page, our Twitter page and this blog. 

Thank you for allowing us to include your child/children in our slideshow!

*During September, we will be sharing facts about Leukodystrophies, doing some videos on our YouTube channel, and sharing children who are battling a Leukodystrophy or who passed away from one. If you would like us to feature your child this month, please send us their name (first and last or at least last initial), type of Leukodystrophy and one thing you would like everyone to know about Leukodystrophies (e.g why awareness is important to you, etc.) to hopealiveministry4you@gmail.com or you can also type it under the “Contact Us” box.

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

 

Posted in Must Reads!

Volunteers Needed in Redesigning blog!

Our blog is in desperate need of a makeover. We want to make it look more professional and also help more families facing life-threatening and chronic illnesses find us. We are looking for your ideas and we also are in need of people who have experience with website design, to help us update this blog. If you are interested, please contact us at hopealiveministry4you@gmail.com or via the “Contact Us” page tab.

Please comment down below some ideas you would like us to include in our updated blog/website. 

Thank you for your support!

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

Posted in Must Reads!

5 Inspirational Songs

Everyone needs encouragement and sometimes hope can come through music. Here are some 5 songs that may inspire you:

1. “Blessings” by Laura Story

2. “I Can Only Imagine” by Mercy Me

3. “Overcomer” by Mandisa

4. “Brave” by Sara Bareilles 

5. “Fight Song” by Rachel Platten 

What are some songs that encourage you when you need extra encouragement?

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

 

Posted in Must Reads!

Last Call for Summer Card Project!

The deadline for our card project is this Thursday, July 20. However, we will extend it if we get enough interest. We are asking people to make homemade cards for us to send to Ronald McDonald House of St. Louis – location nearby St. Louis Children’s Hospital and Ronald McDonald House of Pittsburgh for the families and children there along with thank you cards for the families to give to their child/children’s nurses. Click here for further details.

Thank you for all of your help!

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

 

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4