Thanksgiving is this Thursday and while we try to be thankful all year round, we especially want to remember to be thankful at this time of year.
Here are 6 things we are thankful for in 2017:
1. Our supporters – We appreciate you all!
2. Our families – We are thankful for families facing life-threatening and chronic illnesses. They help us to keep perspective on what really is important.
3. Our God – We are not a “Christian” organization since we want to support families no matter their religion, but both Janis, our Social Media Coordinator and Bayley, Our Founder & Executive Director, have deep faith and God keeps us going.
4. The children – All the children we support are why we do what we do. Their smiles bring us joy.
5. Our Card Angels – Everyone who makes homemade cards every month for these kids make these children smile and we are grateful to them.
6. Our Board of Directors – They help us when we need them the most.
Last year, we created a survey and now have another one. The survey’s help us to figure out how we can best help families facing life-threatening and chronic illnesses as well as find out who is following our social media sites.
We are asking people to send us homemade Christmas cards for us to send to children, teens and thank you cards for the nurses to Ronald McDonald Houses across the United States. The deadline is November 17, so it is coming up. Contact us via the “Contact Us” blog page for our address. Click here for more details.
As we work to become a non-profit organization, we want to reach more families facing life-threatening and chronic illnesses.
We will be creating another survey in the near future for people to offer us feedback. In the meantime, please send us feedback via the “Contact Us” page tab on this blog on things you would like us to do, so we can reach more families.
If you have any ideas for future blog posts or videos, please let us know as well. Also, if you want a HAM long sleeved shirt, onesie or toddler t-shirt, please comment on this blog post to let us know. If we get enough interest, we may re-launch one or all of the campaigns.
Deadline to purchase HAM long sleeved shirts, onesie and toddler t-shirts is tomorrow.
They are $20 each and proceeds go towards non-profit fees, card supplies (and mailing!), care packages we want to send to families facing life-threatening and chronic illnesses and future HAM projects.
To purchase long sleeved shirts, click here. We must sell at least 12 more for them to print. To purchase onesies, click here. We must sell at least 13 more for them to print. To purchase toddler t-shirts, click here. We must sell at least 11 for them to print.
We areselling Hope Alive Ministry (HAM) long sleeved shirts, onesies and toddler t-shirts. The unisex long sleeved shirts come in navy and pink. The pink unisex long sleeved shirt is available in sizes Adult S-3XL. The navy unisex long sleeved shirt is available in sizes Youth S-4XL. Everything except is $20 each. We must sell at least 12 more to print. The prices don’t include shipping. Click here to purchase.
The onesies come in hot pink and navy. They come in sizes Newborn, 6 months, 12 months, 18 months and 24 months. They are $20 each. We need to sell at least 13 more to print. The prices don’t include shipping. Click here to purchase.
The toddler t-shirts come in hot pink and navy. They come in sizes 2t-4t and are $20 each. The prices don’t include shipping. We must sell at least 11 to print. Click here to purchase.
Deadline is end of this month.
Proceeds go towards HAM nonprofit fees, care packages we want to send to families, card supplies (and mailing!), and future HAM projects.
While it is only October, we want to get Christmas cards sent out as soon as possible to several Ronald McDonald Houses across the country. We probably will only be able to send to five at a time, but eventually want to send to all 14 on our list – There will be a blog post next Monday on how to help us with the financial aspect of Hope Alive Ministry.
We are collecting homemade Christmas cards for children, teens and thank you cards for the families to give to the nurses and caregivers. I (Bayley Paharik, Our Founder & Executive Director) will mail them out to several Ronald McDonald Houses.
Do you like to make homemade cards? Well, here is your chance. Please keep messages positive and nothing about sickness like “Get better soon” or “I’m so sorry you are sick.” Also, avoid any religious themes, but you may say “Merry Christmas.” The cards will be sent to Ronald McDonald Houses across the country. We have a list of ones that accept homemade cards that we are planning on sending to this time, but we won’t share the list until a bit later on since we haven’t heard from some yet. If you have suggestions of Ronald McDonald Houses to contact, please email us at firstname.lastname@example.org or use the “Contact Us” form on this blog. We will then tell you if we contacted them already or not. Please include teens as well. Also, you may choose to make some thank you cards (Christmas/holiday themed!) for the families to give to their child/children’s nurses. Deadline is November 17.
Email email@example.com or contact us through the “Contact Us” page tab on this blog for the address. Our Founder/Executive Director, Bayley Paharik, will be sending the cards to the various Ronald McDonald Houses or hand delivering some. You may also contact us at either place for any questions. You may use Christmas stickers on your cards. Be creative!
Thank you for bringing sunshine to these families!
September is Childhood Cancer Awareness Month and the color is gold. Our Founder, Bayley Paharik, made a slideshow featuring childhood cancer facts as well as children who have cancer, in remission from cancer or have passed away from childhood cancer. She also made a childhood cancer slideshow in 2015.
Click here to view the slideshow. Be sure to subscribe to our YouTube channel. We try to upload new videos there every Friday.
We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST).
Today marks 16 years since the terrorist attacks that happened in the United States on September 11, 2001. Most Americans who were alive during that time will never forget it or what they were doing on that day. Some Americans were too young to remember that day or will never be born yet, but they will know what happened on that day from relatives or learning about it in school.
Americans will never forget the horrors of that day!
Today in particular we remember the lives lost 16 years ago today and everyone who were directly impacted by the terrorist attacks such as the firefighters who helped on 9/11 and are dealing with the effects such as breathing difficulties as a result. We also remember everyone dealing with post traumatic stress disorder (PTSD) as a result of experiencing first hand the terrors of 9/11.
September is Leukodystrophy Awareness Month. In September 2013, we made our first ever Leukodystrophy Awareness slideshow. We then updated it in February 2016. We made another Leukodystrophy Awareness slideshow in September 2016 and made an updated version a few days later in September 2016. Our Founder, Bayley Paharik, then made another Leukodystrophy Awareness Slideshow for this month. Please watch it by clicking here. Bayley Paharik made all of our slideshows. In the slideshow, we started with Lipid Storage Disorders since Krabbe Disease and Metachromatic Leukodystrophy (MLD) are both forms of Leukodystrophies and are also Lipid Storage Disorders.