Posted in Must Reads!

Request for Childhood Cancer Slideshow – 2017!

September is Childhood Cancer Awareness Month and we are making a slideshow to raise awareness of childhood cancer. If you would like your child/children ages 0-18 currently battling cancer, in remission from cancer or who passed away from cancer who was between the ages of 0-18 when they passed away, please send us the following to my email address at hopealiveministry4you@gmail.com with the subject line, “Childhood Cancer Slideshow 2017” by Monday, August 28, 2017:

1. 1 picture of your child/children (children who have passed away may be included as well!) in .jpg format. Please choose a picture where there’s enough space on top and on the sides where we can add name, birthdate, age passed (if applicable) and type of cancer.
2. Please include short story of your child – Example: How old they were diagnosed and how you found out they had cancer . No longer than 5-6 sentences in length.
3.  Child’s form of cancer (example: DIPG)
5. Child’s birthdate – Day, Month & Year; Please include even if child passed away.
6. Day, Month & Year of child’s passing (If applicable!)
7. Link to child’s FB, Caringbridge site, or Website (If available, so people viewing the slideshow can follow your child’s journey.)

The Childhood Cancer slideshow will be published publicly (where everyone can view it and share it!) on our YouTube site, our Facebook page, our Twitter page & this blog.

Thank you for allowing us to include your child/children in our slideshow!

*During this month, we will be sharing facts about childhood cancer, doing some videos on our YouTube channel, and sharing children who are battling childhood cancer or who passed away from childhood cancer. If you would like us to feature your child this month, please send us their name (first and last or at least last initial), type of childhood cancer and one thing you would like everyone to know about childhood cancer (e.g why awareness is important to you, etc.) to hopealiveministry4you@gmail.com or you can also type it under the “Contact Us” box.

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

 

Posted in Must Reads!

2017 Leukodystropy Awareness Slideshow!

September is Leukodystrophy Awareness Month and since next month is September, right around the corner. Like last year, I (Bayley Paharik, Our Founder) will be creating a Leukodystrophy Awareness Slideshow. 

If you are interested in your child/children being featured who are between 0-18 or were between those ages when they passed away, please send us the following information to hopealiveministry4you@gmail.com with the subject line “Leukodystrophy Slideshow September 2017” by Monday, August 28, 2017.

1. 1 picture of your child/children (children who have passed away may be included as well!) in .jpg format. Please choose a picture where there’s enough space on top and on the sides where I can add name, birthdate, age passed (if applicable) and type of Leukodystrophy.

2. Please include short story of your child – Example: How old they were diagnosed, when they received a transplant (if applicable) and how you found out they had the Leukodystrophy . No longer than 5-6 sentences in length.

3. Please include if your child/children received a transplant and type of transplant.

4. Child’s Leukodystrophy (If unspecified; please let us know).

5. Child’s birthdate – Day, Month & Year; Please include even if child passed away.

6. Day, Month & Year of child’s passing (If applicable!)

7. Link to child’s FB, Caringbridge site, or Website (If available, so people viewing the slideshow can follow your child’s journey.)

The Leukodystrophy slideshow will be published publicly (where everyone can view it and share it!) on our YouTube site, our Facebook page, our Twitter page and this blog. 

Thank you for allowing us to include your child/children in our slideshow!

*During September, we will be sharing facts about Leukodystrophies, doing some videos on our YouTube channel, and sharing children who are battling a Leukodystrophy or who passed away from one. If you would like us to feature your child this month, please send us their name (first and last or at least last initial), type of Leukodystrophy and one thing you would like everyone to know about Leukodystrophies (e.g why awareness is important to you, etc.) to hopealiveministry4you@gmail.com or you can also type it under the “Contact Us” box.

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

 

Posted in Must Reads!

Volunteers Needed in Redesigning blog!

Our blog is in desperate need of a makeover. We want to make it look more professional and also help more families facing life-threatening and chronic illnesses find us. We are looking for your ideas and we also are in need of people who have experience with website design, to help us update this blog. If you are interested, please contact us at hopealiveministry4you@gmail.com or via the “Contact Us” page tab.

Please comment down below some ideas you would like us to include in our updated blog/website. 

Thank you for your support!

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

Posted in Must Reads!

5 Inspirational Songs

Everyone needs encouragement and sometimes hope can come through music. Here are some 5 songs that may inspire you:

1. “Blessings” by Laura Story

2. “I Can Only Imagine” by Mercy Me

3. “Overcomer” by Mandisa

4. “Brave” by Sara Bareilles 

5. “Fight Song” by Rachel Platten 

What are some songs that encourage you when you need extra encouragement?

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

 

Posted in Must Reads!

Last Call for Summer Card Project!

The deadline for our card project is this Thursday, July 20. However, we will extend it if we get enough interest. We are asking people to make homemade cards for us to send to Ronald McDonald House of St. Louis – location nearby St. Louis Children’s Hospital and Ronald McDonald House of Pittsburgh for the families and children there along with thank you cards for the families to give to their child/children’s nurses. Click here for further details.

Thank you for all of your help!

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives. We post new YouTube videos every Friday at about 6 PM Eastern Standard Time (EST). 

Hope Alive Ministry Social Media: 

Facebook – www.facebook.com/HopeAliveMinistry

 

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

 

Posted in Must Reads!

HAM Highlights in 5 1/2 years!

Yesterday (July 9, 2017) marked 5 and 1/2 years since Hope Alive Ministry (HAM) was created. We have accomplished a lot in 5 and 1/2 years. 

Here are some highlights:

January 9, 2012: HAM’s FB page was created by our Founder, Bayley Paharik.

January 2013- April 2013: Honored children who passed away during that timeframe by posting their names on a Facebook event page. 

July 9, 2013: Hosted an online party via our Facebook page in honor of our 1 and 1/2 year anniversary of our Facebook page where we posted games like “Name This Tune”, “Bible Trivia”, etc. along with inspirational pictures/edits, music, and a video someone made about our mission. 

February 28, 2014: Hosted our 1st annual online Rare Disease Day Event via a Facebook event where we invited participants to post facts on rare diseases, inspirational music, pictures about rare diseases, acrostic poems with adjectives describing courageous children they follow, and honored children who passed away from a rare/undiagnosed disease.

January 9, 2014 – March 22, 2014: Hosted an online book club via this blog where we read 3 books; one book per month and then participated in an online discussion on the blog

November 21, 2014 and November 22, 2014: Organized our first in-person community event where we wrapped 50 shoeboxes filled with small toys, playing cards, fuzzy slipper socks, homemade cards and other fun items for the families staying at Ronald McDonald House of Pittsburgh, Pennsylvania as part of a project with the social work club, “Project Hope” at Seton Hill University in Greensburg, Pennsylvania. 

January 2015: Launched our “Hope in Art” project in honor of our 2nd anniversary of our Facebook page by sharing artwork from children on what hope meant to them on our FB page.

January 15, 2015: Featured in Catholic Accent – Greensburg, Pennsylvania Catholic Diocesan newspaper.

February 28, 2015: Hosted our 2nd annual Rare Disease Day Event through a Facebook event where we invited participants to post facts on rare diseases, inspirational music, pictures about rare diseases, acrostic poems with adjectives describing courageous children they follow, and first names of children who passed from a rare/undiagnosed disease.

September 12, 2015: Hosted our 1st “Wings of Hope: A Childhood Cancer Awareness Event” held at Saint Vincent Basilica Parish in Latrobe, Pennsylvania in their Assembly Room. We released butterflies and made cards for children with cancer (All cards were sent to Nemours Children’s Hospital in Orlando, FL). We also awarded the Thinking of Nikki Foundation with our 1st “Wings of Hope Award” and collected donations for “Joy Jars” – a project of the Jessie Rees Foundation. “Joy Jars”are filled with small toys and other fun items and are sent to children battling cancer around the world. 

December 5, 2015: Featured on the “Parker J Cole Show“, an online radio talk show discussing Hope Alive Ministry. 

January 9, 2016: Hosted an online party via a Facebook event page to celebrate our 4th anniversary of our Facebook page where we had people post favorite memories of Hope Alive Ministry (HAM), favorite parts of HAM, suggestions for HAM, Q&A for HAM and encouraging words to families we support (e.g families facing life-threatening or chronic illnesses).

February 16-February 23, 2016: Organized a Leukodystrophy Awareness Slideshow – Social Media Campaign that encouraged people to share our Leukodystrophy Awareness Slideshow by joining our online Facebook event in order to raise awareness about Leukodystrophies.

February 29, 2016: Hosted our 3rd annual Rare Disease Day Event through a Facebook event where we invited participants to post facts on rare diseases, inspirational music, pictures about rare diseases, acrostic poems with adjectives describing courageous children they follow, and first names of children who passed from a rare/undiagnosed disease.

January 5, 2017: Featured on the “Parker J Cole Show”, an online radio talk show for the 2nd time. Click here to listen to the interview.

January 9 – January 30, 2017: Organized art supply drive to celebrate our 5th anniversary of our Facebook page where we collected art supplies for Ronald McDonald House of Pittsburgh

February 28, 2017: Hosted our 4th annual Rare Disease Day Event through a Facebook event where we invited participants to post facts on rare diseases, inspirational music, pictures about rare diseases, acrostic poems with adjectives describing courageous children they follow, honored children who passed away from a rare/undiagnosed disease and a Giveaway with items from Global Genes – a rare disease advocacy organization and Hope Alive Ministry t-shirts and items we donated.

We currently are in the process of becoming a non-profit organization. 

Right now, we are asking for people to make homemade cards to send to us for us to send to children and their families at Ronald McDonald House of Pittsburgh and Ronald McDonald House of St. Louis – location nearby St. Louis Children’s Hospital. More details here

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives.

Hope Alive Ministry Social Media:

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

Thank you for your support!

 

Posted in Must Reads!

Summer Card Project!

Do you like to make homemade cards? We are in need of thinking of you cards for children battling life-threatening and chronic illnesses and their families.

Here are the instructions:

1. Please avoid any religious messages since lots of people from different religions will receive the cards.  

2. Please avoid anything about sickness such as “I’m so sorry you are sick.” or “Get well soon.” A lot of these children have terminal illnesses and they want a card to cheer them up.

3. Keep the messages positive and hope filled!

 Be creative! You may use stickers and you may use a variety of stickers as the cards will go to little kids all the way up to teens. 

Please include your name on the envelope, so we know who to thank for the cards and put Hope Alive Ministry somewhere on the envelope. 

*You may use any paper you have, but we prefer cardstock since it’s better for mailing.

The cards will be sent to Ronald McDonald House of Pittsburgh and Ronald McDonald House of St. Louis nearby St. Louis Children’s Hospital to the families there. 

If you are interested in participating in this project, please use the “Contact Us” tab on this blog to get the address to send the cards to. Our Founder, Bayley Paharik, will receive and then mail out all the cards. 

The deadline to send cards is Thursday, July 20.

Thank you for all your help!

 

Posted in Must Reads!

Happy Belated Father’s Day 2017!

Yesterday was Father’s Day in the United States and Canada. We want to wish a Happy Belated Father’s Day to all fathers, grandfathers, fathers-to-be, step fathers, and father-like figures! We especially want to remember fathers who have had a child/children pass away.

Happy Belated Father’s Day to you all!

fathersday

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives.

Hope Alive Ministry Social Media:

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

Thank you for your support!

Posted in Must Reads!

Summer Book Drive for HAM idea!

Since summer is just around the corner (June 21 in the Western Hemisphere), we are thinking of doing a summer book drive. We would collect new books for children’s hospitals and Ronald McDonald Houses across the country. Reading helps a child get their mind off their illness and cheers them up. All books would be mailed directly to us via an Amazon Wish List and then mailed to the children’s hospitals and Ronald McDonald Houses across the United States. We hope to collect about 500 books from newborn to teens. Please comment down below if you would be interested in purchasing books for our book drive. We will let you know if we decide to go through with it as well as more details. 

We post new blogs every Monday at 8 PM Eastern Standard Time (EST), so be sure to follow our blog for updates. To see new and old posts, go to the “Must Read” page tab. You can also go search under archives.

Hope Alive Ministry Social Media:

Facebook – www.facebook.com/HopeAliveMinistry

Twitter: @teamhopealive

Instagram: @hopealiveministry 

YouTube: http://bit.ly/2of8Ni4

Thank you for your support!