Posted in Must Reads!

Rare Disease Day 2016 Coming Soon!

World Rare Disease Day is this coming Monday, February 29. In 2014 and 2015, we hosted an online Rare Disease Day Event. This year, we will be hosting another one. The event is from 11 AM ET-8:30 PM ET and we have different activities planned from having people share facts about rare diseases to honoring children who have passed from rare diseases. The event is on Facebook, so you must have a Facebook account to participate. We will be releasing a slideshow featuring children with rare diseases as well as making two special announcements at the conclusion of the event. Click here to join us. 

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