We will be releasing a slideshow featuring children battling Leukodystrophies and who passed away from a Leukodystrophy tonight, Tuesday, February 16 at 7 PM ET. Leukodystrophies are “a group of rare genetic disorders affecting the central nervous system by disrupting the growth or maintenance of the myelin sheath that insulates nerve cells.” (Source: www.ulf.org) They are progressive and usually fatal.
Join us to share all at one time our slideshow at our Facebook event page by clicking here on or after tonight, 2/16 at 7 PM ET. You must have a Facebook account to participate!
The event is open for a week, so you can share it after that time, but we want as many people as possible to all share the link to the slideshow tonight at 7 PM ET. Our goal is to make the video go viral, so more people can learn about Leukodystrophies and these amazing kids.
Together, we can make a difference and help raise awareness of Leukodystrophies!
When sharing, please use the hashtag: #VoiceforLeukodystrophies