Rare Disease Day Online Event – More Details Coming Soon!

February 29, 2016 marks World Rare Disease Day. This year’s theme is “Patient Voice.” For the 3rd year in a row, we will be conducting an online Rare Disease Day Event in conjunction with World Rare Disease Day. We will also be creating an event page via Facebook that you can join if you have Facebook. We will be posting more details here this Thursday, January 21, 2016.  Stay tuned for more details!


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