February 28 marks Rare Disease Day once again. On the last day
of February every year, there is a National celebration of
Rare Disease Day.
Last year, in celebration of Rare Disease Day, we at
Hope Alive Ministry hosted an online event.
This year, we are hosting a similar event.
The event will be conducted online on our Facebook page.
(See Events tab).
Details on the event:
Together we will raise awareness of rare diseases and undiagnosed diseases.
The event will be broken up into question & answer (Did you know…
about this disease?), people posting supportive pictures as well as
songs and poems, and finally a remembrance with the names of
those who’ve have passed away from a “rare” or undiagnosed disease.
Everyone is welcome to post the names of ones who have passed
as well as those who are still fighting.
The event will take place all day on February 28 and anyone from
throughout the world can participate.
More details will be announced in the coming weeks as we get closer
to Rare Disease Day.